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Still Point Of The Turning World
Like all mothers Emily Rapp had ambitious plans for her first and only child Ronan. He would be smart loyal physically fearless level-headed but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of
sorrow; to parent without a future. The Still Point of the Turning World is the story of a mothers journey through grief and beyond it. Rapps response to her sons diagnosis was a belief that she needed to make my world big - to make sense of her familys situation through art literature philosophy theology and myth. Drawing on a broad range of thinkers and writers from C.S. Lewis to Sylvia Plath Hegel to Mary Shelleys Frankenstein Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent to be a success and to live a meaningful life.
sorrow; to parent without a future. The Still Point of the Turning World is the story of a mothers journey through grief and beyond it. Rapps response to her sons diagnosis was a belief that she needed to make my world big - to make sense of her familys situation through art literature philosophy theology and myth. Drawing on a broad range of thinkers and writers from C.S. Lewis to Sylvia Plath Hegel to Mary Shelleys Frankenstein Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent to be a success and to live a meaningful life.
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